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Posted by Cooley, Howard on September 05, 2000 at 10:02:01:

In Reply to: Super Nuclear Palsy Need to know more. posted by Dessie Feick on June 03, 1999 at 22:01:23:

1. Need to know the progression of this disease....We do not know what to expect..please help

2. REPLY TO PERSON WHO POSTED FOR HELP IN JULY.
I AM JUST GETTING ON LINE REGARDING THIS. A RELATIVE WAS DIAGNOSED WITH PSP LAST WEEK SO WE ARE TRYING TO COME UP WITH A ORDERLY PLAN. I CALLED THE PSP SOCIEY, AT 410-486-3330, FOR INFO VIA MAIL. THEIR WEBSITE IS WWW.PSP.ORG. THE SOCIETY HAS SUPPORT GROUPS. NONE ARE IN OUR CITY, SO WE MIGHT START ONE. WILLING TO SHARE OUR SUPPORT PLAN AND PROVIDE ANY ASSISTANCE POSSIBLE.
END OF MESSAGE. SET 5, 2000

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