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Posted by JANE on April 27, 1999 at 11:31:52:

FOR THE PAST SEVERAL YEARS I HAVE SUFFERED FROM VARIOUS NEUROMUSCULAR SYMPTOMS WITH NO CLEAR CUT DIAGNOSIS. MYBLODD WORK HAS BEEN SIGNIFICANT FOR ELEVATED ACE LEVELS, POSITIVE ANA WITH A SPECKLED PATTERN, DEPRESSED WHITE COUNT AND MILDLY ELEVATED SED RATE. I HAVE HAD EMGS AND NCS WHICH SHOW NEUROPATHY--PRIMARILY DEMYLINEATING AND MYOPATHY OF TWO EXTREMITIES. MRI OF THE BRAIN HAS BEEN NORMAL AND CT OF CHEST NORMAL.

RECENT VISIT TO JOHNS HOPKINS WITH SUBSEQUENT BLOOD WORK SHOWED CONTINUED ELEVATED ACE , SLIGHTLY LOW WHITE COUNT, AND POSITIVE ANTI-HU ANTIBODY.

CAN ANYONE GIVE ME FURTHER INFOR ON THE RELEVANCE OF THE ANTI-HU ANTIBODY? SINCE THE CT OF CHEST WAS NORMAL--NO SIGN OF TUMOR--SHOULD I STILL BE CONCERNED WITH CANCER OR CAN THE ANTI-HU ANTIBODY BE PRESENT WITH OTHER DISORDERS. ALSO CAN THIS BE FAMILIAL? I HAVE 9 BROTHERS AND SISTERS AND HAVE TWO ELDER SISTERS THAT SUFFER FROM VERY SIMILAR SYMPTOMS BUT ALSO HAVE NO CLEAR CUT DIAGNOSIS.

AGAIN ANY INFO YOU HAVE WOULD BE APPRECIATED.

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