unknown neurapathy

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Posted by Diane on October 11, 2000 at 10:33:37:

In August 1995, at age 35, I was hospitalized for an unknown neurapathy. The syptoms were very similar to GuilleBarre but that was eventually ruled out. I began to lose strenth in my legs and the weakness worked its way up to my upper body over a 2 month period. High doses of steriods were given to stop the problem. My chart read that I had Lupus. the lupus was attacking my peripheral nerves that stimulate my muscles. The prognosis was that the nerves would eventually regenerate. Its now 5 years and my legs are still very weak. i use a wheelchair and walker and rely on my arms to pull myself where i have to go. i have been in physical therapy for the last 5 years. Has anyone heard of anything similar? I am on numerous medicines to control the LUPUS. I have been told that my case is extremely rare (1 in 10 in the last 20 years). I appreciate your feedback.

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Re: unknown neurapathy susanrhemlepp 20:59:38 12/02/00 (0)

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: In August 1995, at age 35, I was hospitalized for an unknown neurapathy. The syptoms were very similar to GuilleBarre but that was eventually ruled out. I began to lose strenth in my legs and the weakness worked its way up to my upper body over a 2 month period. High doses of steriods were given to stop the problem. My chart read that I had Lupus. the lupus was attacking my peripheral nerves that stimulate my muscles. The prognosis was that the nerves would eventually regenerate. Its now 5 years and my legs are still very weak. i use a wheelchair and walker and rely on my arms to pull myself where i have to go. i have been in physical therapy for the last 5 years. Has anyone heard of anything similar? I am on numerous medicines to control the LUPUS. I have been told that my case is extremely rare (1 in 10 in the last 20 years). I appreciate your feedback.