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Re: Help me, My Mother is Dying...

Re: Help me, My Mother is Dying...

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Posted by Jim G. on December 02, 2000 at 22:16:55:

In Reply to: Help me, My Mother is Dying... posted by Kaje on November 29, 2000 at 07:43:38:

: Hello,
: I am sixteen years old, and am writng on behalf of my Mother, whom is currently on her death bed. She has a condition the doctors call Autopic Nueropathy. I have no idea what this is, and neither does she. Her doctor is under the impression that she has been in the deteriation process for the last 10 Months, and nobody realised this was happenniong? They didn't check for it until a few weeks ago. The conclusion is that they don't think they can find a remedy. I am desperately worried as she is in extreme pain most of the time, and can't eat at all. If she has any solid food she spends weeks in hospital with pain and dire nausea.
: Please, if you can, tell me what this is? What are the cures? are there any cures???
: Personally I would like all the information i can get, so I can help her! Please send me some...

: Thankyou
: Yours faithfully

: Kaje Sharpe

: P.S. please reply soon....

Hello Kaje,
Our sympathy goes out to you and your mom. After reading your message post, My wife & I found more information on what you called "Autopic Nueropathy". We believe the correct spelling for this disease is "Autonomic Neuropathy". We found information at the following website; http://my.webmd.com/content/asset/adam_disease_autonomic_neuropathy. THERE IS HOPE! This is a quote from WebMD on this disease that you will find @ this site, "The outcome varies. If the cause can be identified and treated, there is a chance that the nerves associated with autonomic neuropathy may repair or regenerate. The symptoms may reduce with treatment, or they may persist or worsen despite treatment. Most symptoms of autonomic neuropathy are uncomfortable but are seldom life threatening." Additional quotes on treatment from WebMD are as follows; "Treatment
Treatment is supportive. Treatment may need to be chronic and prolonged, and the response to treatment varies. Several treatments may be attempted before a treatment that is successful in reducing symptoms is identified.
The use of elastic stockings and sleeping with the head elevated may reduce postural hypotension. Fludrocortisone or similar medications may be beneficial in reducing postural hypotension for some people.
Medications that increase gastric motility (such as Reglan), use of small frequent meals, sleeping with the head elevated, or other measures may be used to treat reduced gastric motility.
Manual expression of urine (a technique in which the hands are used to compress the bladder), intermittent catheterization, or medications such as bethanechol may be necessary to treat bladder dysfunction.
Impotence, diarrhea, constipation, or other symptoms are treated as appropriate. These symptoms may respond poorly to treatment.

We are praying for your family & let us know if this info was helpful.
God Bless you,
Jim G.




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