Re: Pagent's Disease

In Reply to: Re: Pagent's Disease posted by Carol on April 06, 2000 at 10:51:40:

: : My mother has been told that she is suffering from Pagent's disease, but her doctor has been unable or unwilling to provide her with any information on this condition.

: : Are any of the readers of this website able to direct me to information on this condition, so that I can pass it on to mum?

: : Thanks

:
: You can contact the Nat'l Paget's disease foundation. They will mail you monthly newsletters with the most up to date information on this subject. My father's entire family has this disease, which is a very serious disease and there are specific medications for it. Early intervention is what you would want to go for!
: There is a specific blood test for this disease and an x/ray called a, "three phase bone scan."
: I hope this will help you get started. Please feel free to contact me for more help in you need it.

My mother has a new diagnosis of Pagent's as well. Does anyone have any contact
information for the National Pagent's Disease Foundation? Any other info on Pagent's
Disease would be appreciated. Please respond asap, since no one really knows much
about this disease. Thank you.