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Posted by Carol
on May 08, 2000 at 19:14:25:
Hi I have been reading thru here and noticed you have a syrinx,if you haven't already please visit the asap4sm.com site and also www.geocities.com/Hot Springs/Chalet/2135/ there you will find stories from many of us with SM or ACM and believe me we know the pain even the smallest syrinx can cause,maybe we could give you some support there,we have a disscussion board and also we visit a chatroom at MGH if you'd like to join us please visit the last site an we'll guide you there,The listserv at the asap4sm.com wedsite is very good to if you haven't already found it,Just thought I;d let you know in case.
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