Posted by Pam
on August 25, 2000 at 15:03:26:
Please join us on the NEW mailing list for
Multiple System Atrophy(MSA) which includes the following:
MSA-A (autonomic) or ShyDrager Syndrome (SDS)
MSA-C (cerebellar) or sporadic Olivopontocerebellar Atrophy (OPCA)
MSA-P (parkinsonism) or Striatonigral Degeneration (SND)
This electronic mail list was initiated in 1995 by the Vanderbilt
Autonomic Dysfunction Center so that patients with Multiple System
Atrophy (MSA) and their caregivers could communicate with each other
throughout the world. The electronic mail list is open to patients,
caregivers, and others who are interested in MSA. Through use of the
electronic "party line", anyone can ask a question, answer a question,
post information on medication and treatments, share the good and the
bad times, etc. A person with a computer and access to email can join
the list by subscribing or by having a friend or relative subscribe
and relay messages to the list.
In August 2000, the list moved from the host Vanderbilt server to
eGroups where some new and improved features are available including a
webpage which allows access to archived messages and links to
information on Multiple System Atrophy.
To subscribe to the NEW mailing list send an email to:
By default you will be subscribed to the regular email option.
If you find this generates too many emails, our new list location
offers you two alternative ways you can cut down on the number
of messages you receive to your inbox:
1. Switch to WEB ONLY/NO MAIL access - This means that
you will receive no emails at all to your inbox. You can
still go to the website however and view all the messages
whenever you choose, reply to them from the web and search
for a particular word or phrase in the archives. There is also
an extensive list on LINKS to shydrager/MSA information
that you can view from the website.
To turn off mail delivery to your inbox:
1. send an email to firstname.lastname@example.org
2. send another email to email@example.com
To view mail at the website(you can do this even if
you have not switched to the nomail option):
1. Go to http://www.egroups.com/group/shydrager
2. Click on the words "Sign In" in the top right of the
3. Enter your email address and password
4. Click on "Messages" on the left of the screen
5. To view the extensive list of LINKS to Shydrager
information click on "Links" on the left of the screen.
Don't know your PASSWORD?
1. If you don't know your password go here:
http://www.egroups.com/remind and request that it be sent
2. To change your password to something you can remember
2. Switch to the DIGEST delivery option - You'll only
receive a couple emails per day and each one will contain
a bundle of about 20 or 25 individual messages. You can
skim them quickly and cut and paste to reply to the ones
that interest you.
To switch to DIGEST mode:
a. send an email to firstname.lastname@example.org
b. send another email to email@example.com
We hope one of these two options will enable you to stay
connected with the ShyDrager (MSA) support community here on eGroups.
ShyDrager(MSA) Group Moderators