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Posted by pete on August 26, 2000 at 12:51:46:

In Reply to: Severe Parkinson's leg pain posted by Bruce on August 25, 2000 at 21:54:37:

: I have taken Clonazepam for leg pain and cramps and until now the drug relieved the pain. Both legs get very painful and gets worse when I attempt to stand up. This just started recently and it prevents me from walking. Has anyone experienced this problem and know of a drug that might alleviate some of the pain? Bruce

Hello Bruce
Sorry to hear you are having such an awful time with your legs. When i had dystonic pain before i had a pallidotomy i took cogentin and sometimes a half tablet of sinemet 25/100. This would relieve what i would describe asthe worst pain i have ever experienced--twisting and contorting of the muscles--After my pallidotomy i rarely have seen pain such as this since then. My legs are in a terrible shape not just from pd but from back surgeries and nerve blocks. My legs and toes burn. Sinemet is the drug that relieves this problem right now.
How is your status for surgery? I am going to have dbs sometime before this year comes to an end. The doctor who did my pallidotomy in 1996 is going to do it
hope you have a good day------pete


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