Posted by Carole
on September 09, 2000 at 17:58:15:
In Reply to: Re: Lewy Body Dementia posted by Googy on September 09, 2000 at 17:01:59:
: : My father has been in ill health for the past 20 years. He is 65 years old. He has a history of heart disease (several heart attach and a quad bi-pass), has had a stroke, was diagnoised with Parkinson and Emphysema. He saw a new neurologist yesterday who said that he did not actually have Parkinson, but Lewy Body Dementia. He has no control over the muscles in his body. He spends his days in a wheel chair or in the bed. He can basically do nothing for himself. He has double vision and started halucinating a few months ago. He seems able to carry on a reasonable conservation one minute, and can't the next. Sometimes he recognizes my voice on the phone, other times he will tell me I have a wrong number and hang up on me even with me telling him who I am. I am having a very difficult time seeing my Daddy in this condition. My mother is his primary care giver. This is becoming increasingly difficult for her to handle. What can we expect to happen as this disease progresses? Does anyone know if this is inherited? I am terrified of what the future holds for this wonderful man. I would appreciate any information anyone can supply me with.
: Lewy bodies are not inherited as much as I know.It seems like you are getting different opinions.Go to NPF.com you will find your answers there.My thoughts are with you.My husband has dementia the Lewy bodies are there,he has had PD for over 26yrs.
: just be there for your parents>Dont worry about the future.Blessings,
I'm going to recommend a book that helped me so much. It's called The 36-Hour Day by Nancy Mace and Peter Rabins. It's available in paperback and answers a lot of questions. Don't worry - get answers - be there - Googy gave excellent advice!