Posted by Googy
on September 11, 2000 at 16:57:38:
In Reply to: Re: Husband Newly Dx posted by Darrell on September 11, 2000 at 12:38:56:
: : Hello there. My husband, age 49, has just been diagnosed with Parkinson's Disease. We haven't even been to a neurologist yet, still waiting for the appointment. I'm puzzled about how to cut down on the protien in his diet. Does anyone know of any books I could read on the subject or any web sites that might help? Also, does this make a huge difference? The diet I mean. I was also wondering if he should be walking for exercise and how much is too much. For example, do you stop when you're tired or push yourself to do a little more to build strength? I must have a million questions. We feel scared and confused. I suppose anyone diagnosed with a major illness does. Do headaches go along with Parkinson's Disease or would that be something else? Any information any of you can give me would be so much appreciated. Thank you
: Hi, I am 49 also and have had PD for about 15 years. I suggest you start taking notes for questions to ask your neurologist. Also pick your neurologist carefully, feel comfortable with him or her, they are going to play a very important role in your lives. One thing you are going to discover is that there is no set course for PD. It seems to have a mind of its own. It progrresses differently, people have different symptoms, different degrees of severity of the same symptom. I have been very fortunate, my PD has progress very slowly with the tremor on the right side basicly the only symptom, until the last couple of years. A LOT more symptoms have developed and severity has progressed rapidly. Just recently I decided to stop working and file for disability. I dont want to paint a gloomy picture because with the right combo of drugs, diet, exercise and POSITIVE ATTITUDE life can be good. Also I just discovered this forum recently and it is a great source of information and encouragement, good luck.
Go to NPF.com they will send you booklets on all features of PD. I know you are scared for your husband,and yourself.But as Darrel said it can be controlled some what.I'm a CG my husband has had PD for over 26yrs.