Posted by Pat McC
on September 12, 2000 at 12:41:13:
In Reply to: Re: Parkinson posted by Debbie on September 05, 2000 at 20:39:05:
: First, let me tell you that this is a great message board where you can get good information and communicate with other PDers or caregivers to PDers like myself (my Mum has PD), so please continue to visit this site, it will help you tremendously as time progresses and will be very supportive. It is good that you are at an early stage of the disease. From all I have read and researched on this disease, my opinion would be that you talk to your PD specialist (make sure your Neurologist is sub-specialised in PD, they will be better able to work with you on meds, etc.) about being put on a neuroprotective med. From what I have read they are still using Selegiline for it. They are also conducting clinical trials on a drug called reluzole (which they think may also be neuroprotective). Another drug in clinical trials is a neuroimmunophilin ligand called GPI1046 (this appears to be the most promising of all thus far that I know of) and is in the early stages of it, it is being conducted by Amgen. Please go to their website for more information or contact them directly. I would urge you to look into the Amgen trials in the long run. Most of all work with a PD specialist who is proactive in treating you, and it may take getting a second opinion and even a third opinion on treatment strategies. You are at a stage where you still have the luxury of several options so make the most of it. If you wish you can write to me at firstname.lastname@example.org if I can be of further assistance to you. BTW, there are no herbs that I know of they can be of help. However, My Mum takes 500mg of Vitamin C, and 800g of Vitamin E, which are both antioxidants. Also, exercise is very important so keep up with walking, some weight training, and Tai Chi will really help you in the long run.
Thank you for the words of encouragement. I am really struggling. I always thought I would be very active
all of my life. I have always golfed and I can't play worth a darn anymore.Anyway, after reading
some of thee messages on this board I realize I am not in as bad a shape as others. I am a 64 yr
old female and I read that several of you were diagnosed in your earlier years. I just never expected
this. I have a great husband that is very supportive. Do you think I am hurting myself by not taking
meds right now? They say the meds only help the symptoms, not cure the desease.I was on Permex
and it wasn't too bad, but I did not feel normal- It made me feel fatigued and funny in the head-
I slowed down a lot when I was on it and I still had a little tremor. Now that I am not on it I feel normaal
but the tremor is worse. It does seem to be really worse when I am stressed. I was at the dentist
last week and about shook out of the chair.I have slowed down in wallking and getting out of chairs
but I am not that bad off. I try to ignore it. I still work. We are self employed. And I do office work.