Posted by CAROLE
on October 06, 2000 at 11:56:44:
In Reply to: About taking medicines posted by Eileen on October 06, 2000 at 10:11:17:
: Hi everybody,
: I know it can be a drag to take so many medicines every day. But just think if you did not take these med. how much worse off you would be. I am grateful to God that there is something there than can control my Parkinsonism. Medicine has come so far these days then when my mother who passed in 1976 for Parkinsons had. She was in a experiment with L Dopa. She had very adverse effects from that. I remember that very well. So we should be thankful that God has given us another day on this wonderful planet. Enough preaching. Bruce I am sorry to hear about your fishing line, Hope it wasen't to tangled LOL
Modern medicine has given me a second life. I'm going to included a paragraph I wrote to my sister-in-law describing a recent OFF period. I think God taps on our shoulder sometimes to remind us to count our many blessings. I certainly took time following this episode: (FYI - for newbies - I have had brain surgery to implant electrodes in the STN of the brain, May of '99, and have two generators implanted in my chest; electromagnetic waves can sometimes turn them off and here's what happens to me when that happens.)
I was leaving the garden center today and noticed my right side got turned off. Funny how that happens just once in a while and not every time; i.e. our own shop door has a big magnet over the door. Turned me off once. Man, it really makes me thankful when it happens, to have these. I was shaking so bad. My teeth were chattering and my voice sounded like I was driving over a bumpy road (I was saying stuff like, "Where's my magnet....") . I had my medicine IN me (Sinemet CR and Comtan), but they didn't help when I had no electrical stimulation. My hand and foot were pumping like jack hammers, my stomach and my head were shaking - I wonder how I could drive. My right foot felt like it just shrunk up 6" the dystonias were so bad; I was getting rigid as a board. I got my magnet (which I am NEVER without) out of my purse, held it on my (left) side of my chest, felt the tingling hit my toes and nothing happened (this is the side that was replaced in March). Nothing happened - so I did it again, felt the tingling again, and this time WHAM BAM - the tremors stopped; like someone waved a magic wand over me. My foot "grew back" and the feeling of relaxation that hit was dream-like. If you can imagine a rubber band (like the kind we used to fly balsa planes) just winding up tighter and tighter and then when you let go, whoosh. That's the best analogy I can come up with.
Well, I can't imagine what the PWP went thru in generations preceding, but it must have been hell. I can see why they USED to say you'd have 15 good years following diagnosis. I've made it 16, and with this surgery, feel like another 16 are possible. As I have a long life ahead of me, I hope to keep doubling the numbers of quality life. I feel miracles are happening every day, and I'm one of them!