Posted by Bruce
on October 13, 2000 at 18:47:03:
In Reply to: Re: bruce:DBS surgery posted by sandy on October 13, 2000 at 02:35:18:
: : : : : : Pete, I was just curious about where you are going to have the surgery and if medicare will pay for most of it. Good luck take care. PS: I am still waiting for the call to get an appointment. Bruce
: : : : : hello Bruce
: : : : : I will have the dbs at the University of Virguinia Hospital in Charlottesville, Va. Dr Laws will do it as he did a pallidotomy for me in 1996.
: : : : : I doo not have an appt. either--they will call some time before the new year
: : : : : I think medicare will pay for most of it --it did pay for pallidotomy--eventually--
: : : : : I hope you get logged in soon -it is a little nerve-racking to play the waiting game so long.
: : : : : What symptom is the one that is giving you the most trouble? And, which one of thne procedures will you have?
: : : : : you take care--God bless you--I appreciate your writings-pete
: : : : :
: : : : Pete: thank you for answering my message. It looks like we are thinking along the same line, because it is unsettling not to have a definite date. I am hoping to find out something on Wed. when I call the nurse coordinator at Kansas University med. center. So far I usually get the answering machine and then have to wait a couple of days for her to return my call and then I am told she will get back to me next week. My worst problem is weak leg muscles and have poor equilibrium. So I started to use a walker and that helps alot. My neuro at Ohio State med. center recommended the DBS surgery on both sides at the STN site. Their evaluation takes 4-5 days and that will probably wear me out. I was also told it would be at least in January before I could have the surgery. I am truly blessed at having a good friend who is willing to transport me to just about anywhere whether it is snowing or not. It was good to hear from you Pete. Take care. Bruce
: : :
: : : BRUCE - MAY I ASK IF THERE'S A REASON WHY YOU'RE NOT GOING TO HAVE YOUR DBS AT OHIO STATE?
: : Sandy, I would love to have the surgery at Ohio State, because it is only a three hour drive and also I have a lot of confidence in my neuro Dr. Jean Hubble. Dr. Lieberman described her as "one of the best." The problem is they are not currently set up to perform the surgery. No one at OSU could give me a definite date when they will get started and the estimated dates they would give me were pushed back a few times. I thought Kansas U. med center would be a sure thing, because they have done so many of the STN surheries. Unfortuneately, I have been calling the coordinator about once or twice a week for about a month and each time I talk to her, she tells me to check back at a later date. I am sure she is very busy, but I am at a loss to understand why she can't give me a date after all this time. It is a nine hour drive to Kansas City from here and they might let me go to OSU for the programing of the device. How is that for a long answer? Bruce
: SORRY, BUT I DON'T KNOW HOW TO REPLY CORRECTLY. HAVE YOU THOUGHT ABOUT CINCINNATI? THEY'VE DONE OVER 200 WITH A 98% SUCCESS RATE AND I DON'T THINK THEY'LL GIVE THE SAME RUN AROUND AS YOU'RE GETTING. AND - HAVE YOU THOUGHT ABOUT CLEVELAND CLINIC. THAT DR. IS WORLD RENOWN FOR DBS.
Sandy, thank you for the suggestions, but as I was about at the point of giving up on KU, the nurse called this morning and gave me a date for the evaluation process, December 27. She stretched out the process to one week which will be a little more expensive for me, but I guess it was the only way to make sure all the people I am supposed to see have an opening. I was aware that the Clevlend Clinic performed the surgery and I know the clinic has a great reputation, but the distance was about the same as from here to Kansas. I am just very relieved that my three year search for this surgery is almost over. Bruce