Posted by Carole
on October 20, 2000 at 01:31:49:
In Reply to: Re: What do I do now? posted by Bettty H. on October 20, 2000 at 00:11:06:
: : : My husband is 45 and was just diagnosed with PD. We are all just shocked.
: : : I know so little about the disease I feel almost embarassed, but my husband's Uncle also had
: : : PD, so he has had a little more exposure to it. I feel so frustrated I could scream,"WHY US, WHY NOW???"
: : : I know that sounds selfish, I just don't understand. People have told me that there is help for both of us on the internet
: : : so that's why I'm here. Hoping that somewhere out here there is a place where I can learn more about my husband's condition.
: : : Are we doomed? How long will we have together now?
: : : Thank you for letting me vent a little.
: : : MAribelle
: : Maribelle, First of all take a deep breath and relax, because I have had Parkinson's for about nine years and I still find ways to take care of myself. Attitude is a very important in dealing with this disease. It is important for your husband to get plenty of exercise and try to keep a positive attitude. Go to the NPF website www.parkinson.org and you can learn more about pd. On the home page, if you want to get a real expert opinion about pd, click on "ask Dr. Lieberman questions" and he will give you an excellant answer to any questions that you might have about pd. Their are so many great things to experience and enjoy in life, that is much better then being anxious about this disease. Get out an enjoy your selves, that is what I try to do each day. God bless you. Bruce
: When you go to the National Parkinson Foundation web site, as Bruce suggested, I'm sure it will be very helpful, but it will be overwhelming at first. They have a lot of information they will send you at no charge. Ask for it. Also check on the local support groups in your area. They can be a good source of strenght and fellowship.
: There is a great group of folks on this PD Message Board of all ages. Some have PD and others are care givers, but all are willing to help others. We are here for you, as well and understand what you are going through.
: Hang in there, there WILL BE brighter days ahead.
: Blessings to you and your husband.
: Betty H.
Every cloud has a silver lining. I am a 47 year old female and started having symptoms when I was 31 (maybe younger.) I'm still around, expecting to live a long quality life with my husband. It has taken 16 years to look back and see what wonderful opportunities this "disease" has allowed me to experience that I probably would have rushed by otherwise. It may force everyone in your family unit to re-evaluate your priorities; a forced mid-life crisis, so to speak. Every day holds new surprises. Keeping a positive outlook will extend both you and your husband's good times. It will take a while to adjust. Love and hug each other and welcome to the PD community. We have become a big family here. The medical advances since I was first diagnosed have been phenomenal. Blessings to you both. It will be just fine!
(((((((hugs to you))))))))