Posted by Darrell
on October 20, 2000 at 15:33:12:
In Reply to: Re: What do I do now? posted by john on October 20, 2000 at 08:14:07:
: I'm 47, five years into the disease, 4 kids, still driving - what do you do now - well you curse and you cry a bit - and then you pick yourself up and realise that you still feel ok, still feel the same as you did yesterday and you look around and begin to notice how many people who walk around looking ill, are in wheelchairs, have terminal diseases - you begin to see the world through different eyes - and realise there are much worse things out there - like cancer - AND YOU GET ON WITH YOUR LIFE - i'm still working, still living much the same as before - and i put alot of it down to the fact that i'm just so busy that i haven't got time to be ill - sure i have bad days and feel tired most of the time - but i did before i had pd - so just get on with it, get some support but don't get obsessed with the disease and knowing all about it - the saddest pd sufferers are those who let it dominate and define their whole life - stay in the real world and mix with healthy people - pd is a constraint, not a vocation - some people have one leg, you have pd - just be sensible, take the medication and get on with life - you and your husband have many good years ahead of you. Good luck and keep smiling (it helps the muscles in your face!!).
I'm a 49 yr old male, dx when I was 35. Like everyone else has said, stay positive, join a support group. There are alot more and better medications available now than when I was first dx, and I believe a cure is just around the corner. I have found this forum extremely helpful, there are both pdr's and caregivers here, so they really understand what you are going through. I have recently had to stop working, but having pd is not the end of the world. Learn all you can about it, then you will understand what is happening. You will go through different stages and adjustments in your life will have to be made but you can still have a great life. Slow down, take a deep breath and smile, God loves you. Good Luck!