Posted by Emily Orlowski
on October 27, 2000 at 10:41:13:
This is my first time at this sight and it is so refreshing to see such a great source of information, advice and personal accounts about PD. My father is now 64 years old and was diagnosed with PD at age 35. 5 years ago he had a pallidotomy for his extreme dikinesia which was tremendously successful. He went from being basically homebound for years to being able to go out shopping and even for short walks on his own.
We were so impressed with the success of that surgery that when the opertunity for DBS came about my father lept at the chance to regain even more freedom. Unfortunatly this procedure was not so successful not only has his condition deteriorated to the point of needing baically constant care he is experiencing dementia and memory loss as well. He is depressed and rarely even speaks. He is now in adult day care 5 days a week because he can't be left alone when my mother and I are wotking. My questions to anyone who may know are: are these typical side effects of DBS and are there any meds or other means of therapy that can help these problems? My comment is that I wish at the time of surgery we could have known if the procedure was not a succes just how life changing and dibilitaing the effects could be. If anyone has input or is experiencing a similiar experience please reply.
Thank you, Emily