Posted by Phil
on November 03, 2000 at 17:49:01:
In Reply to: Re: Husband Newly Dx posted by Patricia on September 13, 2000 at 21:18:04:
: : : : : Hello there. My husband, age 49, has just been diagnosed with Parkinson's Disease. We haven't even been to a neurologist yet, still waiting for the appointment. I'm puzzled about how to cut down on the protien in his diet. Does anyone know of any books I could read on the subject or any web sites that might help? Also, does this make a huge difference? The diet I mean. I was also wondering if he should be walking for exercise and how much is too much. For example, do you stop when you're tired or push yourself to do a little more to build strength? I must have a million questions. We feel scared and confused. I suppose anyone diagnosed with a major illness does. Do headaches go along with Parkinson's Disease or would that be something else? Any information any of you can give me would be so much appreciated. Thank you
: : : : Hi, I am 49 also and have had PD for about 15 years. I suggest you start taking notes for questions to ask your neurologist. Also pick your neurologist carefully, feel comfortable with him or her, they are going to play a very important role in your lives. One thing you are going to discover is that there is no set course for PD. It seems to have a mind of its own. It progrresses differently, people have different symptoms, different degrees of severity of the same symptom. I have been very fortunate, my PD has progress very slowly with the tremor on the right side basicly the only symptom, until the last couple of years. A LOT more symptoms have developed and severity has progressed rapidly. Just recently I decided to stop working and file for disability. I dont want to paint a gloomy picture because with the right combo of drugs, diet, exercise and POSITIVE ATTITUDE life can be good. Also I just discovered this forum recently and it is a great source of information and encouragement, good luck.
: : : Hi Patricia,
: : : Go to NPF.com they will send you booklets on all features of PD. I know you are scared for your husband,and yourself.But as Darrel said it can be controlled some what.I'm a CG my husband has had PD for over 26yrs.
: : : Blessings,
: : : Googy
: : ++++++++
: : Hi Patricia-
: : I'm 47 and have had PD since I was 31. Darrell and Googy gave you good advice. The NPF website (National Parkinson's Disease Foundation) is chuck-full of info.
: : on Protein-
: : I never noticed that it interferred with my dopamine until the last 5 years or so, others notice it right away. The general rule of thumb is to take meds 1/2 half hour before mealtime, or wait 1 to 1 1/2 hrs. afterward. Limit protein intake until later meals although dont eliminate it because it is a major source of energy and builds muscle.
: : on Exercise-
: : It is as important as taking your medicine; the other 50% of his treatment. My preferences are weight lifting to build the muscles (use em or lose em); walking my dog; try Tai Chi for balance; go day by day. Some find swimming a wonderful exercise (only not alone in case he might have a freezing episode; it's happened). Whatever he likes to do, he should do. It's important not to give in to this disease and become a couch potato.
: : Most of us have good days & not as good days. You just have to listen to your body. I'd say, if he gets tired and needs a nap, then rest.
: : The best therapy I can think of is NO STRESS. Most of us can attest to this!! Whatever it takes to make this transition, it's worth it. Transcendental meditation to antidepressants, whatever it takes, do it. Keep coming here and ask away! Knowledge is a powerful weapon and Parkinson's in the enemy within. Never give in to the enemy!
: : Best of wishes for both of you in the future! You can make it thru this!
: : Carole+++++++++++
: : ++++++++++++++++++
: Thanks so much to Darrel, Googey and Carol. Your willingness to answer questions and provide advice is a true blessing. I know we will make it. I'm very encouraged to hear from folks like yourselves who are living proof that life does go on and can be good. I'm not sure if you know how much it means to have this resource to turn to or how much of a difference people like you make in the lives of others but I want to thank you from the bottom of my heart.
I was diagnosed at age 48. After five years I still only suffer from tremors. All the above information is accurate. If your neuorologist does not provide you the same, keep searching until you find one that does. A good neorologist will also tell you that levodopa may become less effective after four to five years, so if your husband's tremor is not severe, he may want to try an agonist first. (You will find this information confirmed in other websites) I, personally, found that stress agrivates my tremors significantly. I underwent a psychotherapy process called EMDR to understand the stress I placed on myself as well as how to deal with environmental stress. It has helped immensly. Good luck.