Posted by Googy
on November 19, 2000 at 00:52:33:
In Reply to: Re: early onset? posted by Bruce on November 18, 2000 at 20:53:45:
: : Hi Leathan,
There will be an answer.Follow Bruce's advice.Keep in touch with us,we do have many young PWP's on this board,i know they will help you also.
: : I experience a severe mental state which makes me feel extremely basic and hence very frightened.
: : It is very hard to describe. I feel confused , disorientated , muted , very unintelligent , forgetful , slow , and not surprisingly a bit low.
: : It has , in short , devestated my life. I am in my early 20's. I have a severe concentration problem which has now impacted severely on me.
: : My mind just appears to stop. At least in the past this would fluctuate - now I have not had any significant relief from it in a long time and I feel very basic.
: : I experience a shake in my right hand when putting it on a table. It's become more or less guaranteed that more often than not it will shake when relaxed. Also have a head quiver - again when it is relaxed , i.e. - lying down.
: : General body shake can occur also.
: : Over and above this , extreme fatigue also renders me to a very basic state. I also get sleep paralysis. But the fatigue is very intrusive.. it is very frightening and shocking. It just comes on - but there is also a general one also - it requires planning out activities in advance.
: : It can feel like your insides have been struck by lightening. Renders to a very basic state.
: : Can also get lower leg pain which forces me to stop walking. It's as if the lactic acid builds up demonizingly rapidly..
: : are there any young-onset-people out there who were diagnosed with ME/CFS and later turned out to have early pd?
: : the symptoms are terrifying at the moment and have a personal , physical , social , all aspect of life impact.. - shocking stuff,
: : it is very embarrassing also , plus at some times when i feel okay people ask me if i am okay , and i have recently read about this masked face business. I don't know - what is this? Does one's face feel tight or something?
: : all i want is some medication or something , I have a CFS/ME diagnosis , but am now starting to question it , and I am not prepared to have to go through the torment of bad attitudes from doctors saying it's all in one's mind.. - that is very damaging. even with a cfs/me diagnosis they are within their right not to accept the diagnosis even if it's been made. it was too exhausting that diagnosed!!
: : thanks
: : Leathan
: : ps : anyone's email address for exchange appreciated..
: Leathann, You have to many symptoms for me to give you a good answer to your questions. I am sorry to see the misery you are experiencing. You definitely should see a neurologist who specializes in movement disorders. Go to the NPF web site (parkinson,org) and sign up for the "ask the doctor" forum. Post everything you have here on Dr. Lieberman's Q and A. You will receive an answer from the doctor in your e-mail within 24 hours. Dr. Lieberman is a Parkinson specialist and he not only gives great answers, but is also a compassionate man. He frequently resommends the best doctors throughout the country. He is the best source on movement disorders that I have ever encountered. If you want to e-mail me, my address is Rblandess@aol,com. Try not to worry or anxious, because it could make your symptoms worse. Take care. Bruce