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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by Judith on May 15, 2000 at 15:45:16:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by jo on December 12, 1999 at 11:58:35:

Hi:
My brother had a splenectomy for TTP as plasma pherisis wasn't working anymore. His count went from 46,000 to 342,000 and holding. He has a complication that we cannot figure out--bruising. His left side from his shoulder blade to his ankle is PURPLE. Has anyone ever heard of this? If he rubs too hard on his arm it bruises. What gives? MD doesn't explain or can't explain.
Judith

: Hi Sheila,

: I am a year post splenectomy and seem to be doing fine. I had TTP years ago and plasma pherisis worked for me. I had it again 2 years ago and I couldn't shake it no matter what the treatment.
: After 18 months and several trips to the ER, I had a splenectomy by scope and have continued to improve. Keep us posted on your mother-in-law"s
: progress.

: JO
: : Hi shelia,

: : I just had my spleen taken out 5 days ago. So far I have had no change in any of my blood counts. I felt at this point i had really no choice. I have done a lot of research on TTP and having a spleenectomy seems to help most people. I have found some really good sites on TTP. E-mail me and I can send you the URL's. I hope all goes well for you mother in-law. This is a horrible amd scary thing to have. i personaly feel that the spleenectomy is definately worth the try. If nothing else it will put her into remission this bout. jdhorn@students.wisc.edu

: : stacy


: : : I would love any information on a splenectomy for the treatment of TTP.
: : : My mother-in-law is currently being treated for her fourth recurrance of TTP. In the past, plasma
: : : apherisis has typically worked to increase her platelet counts. This time, however, they just won't
: : : move -- even after 18 treatments. Looks like she will be scheduled for a splenectomy in the next
: : : week. Any thoughts?




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