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muliple hemangioma of the spine/organs

muliple hemangioma of the spine/organs

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Posted by kathleen b. on June 02, 2000 at 09:55:08:

i am trying to compare myself with anyone who has this rare disorder. i was diagnosed two years ago and still have no prognosis. the lesions are throughout my spine and cover my spleen and liver. i am trying very hard to keep an upper lip but there is not much information or a way to know my future health.
although my lesions are benign i am still concerned. and even more concerned for my three children.



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