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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by Christine Von raesfeld on June 07, 2000 at 17:18:01:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by Jeannie on April 06, 2000 at 00:02:58:

: : I have TTP and I would love any information on a splenectomy for the treatment of TTP.

: Hi there - -

: I've was diagnosed with TTP in May of 1995, and have had 1 low level and 1 major relapse since.
: The last relapse was in October 1997. After a few months of unsuccessfull aphereisis and steroids
: (yuck - bad stuff ;-) I finally agreed to the splenectomy. Boy, wish I had let them do it ealier!

: I am now a happliy married newlywed, and pregnant with my first child!

: On a differnet note, I hear all sorts of different data about the numbers of us who are afflicted.

: I do not have AIDS, never had a transplant, not any hormonal problems that may cause TTP.
: I've heard I'm one in a million! Does anyone have any data?

Hello there!
I was diagnosed with TTP at age 14. I have had two other relapses, one that I am currently going through. I also do not have AIDS or any other problems that could have lead to my getting the disease. It is still a mystery! If you would like to talk further please email me at daizy625@hotmail.com
Christine


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