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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by Justins Mom on August 08, 2000 at 00:08:23:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by Lucette on December 08, 1999 at 16:34:57:

: : I would love any information on a splenectomy for the treatment of TTP.
: : My mother-in-law is currently being treated for her fourth recurrance of TTP. In the past, plasma
: : apherisis has typically worked to increase her platelet counts. This time, however, they just won't
: : move -- even after 18 treatments. Looks like she will be scheduled for a splenectomy in the next
: : week. Any thoughts?

: Hi, when I had my splenectomy, I was 3 months into TTP, pheres didn't seem to be working, steroids either, next alternitive was removing my spleen. That was done the on the first week of June. Not sure if it worked because I still was having low platelets and still being phersed. But on July 20th things began to change for me, I was being phersed and a voice told me that not to worry because things were going to be ok, from that day on, I slowly started getting better, i no longer had hospital stays, treatment was not done as often evertything stated tapering off however i was still tired of all the meds, the pherses all of it. So in Sept of 95 I decided to try Vincristine along with pherses and steroids. by the grace of God my last treatment of Vincristine pherses and steroids was 10/20/95. I havent had any more bouts with TTP but have had two strokes one in 96 and 97, not sure where they came from but to date I am well. Would you please tell me about your mother in law, how old is she? How did she found out she had TTP? Will you keep in touch let me know her progress after the splenoctomy. This illness is so strange and I am still wondering why we have gotten this What does her doctor think it came from? Please email at harts@thegrid.net Thanks LH

Hi god bless all of you and would like some Help im Looking to get a general of How many young boys this nasty disease affects my son is Now 17 but got sick for no apparent reason at age 15 No drug us they tested no Aids and Not induced by meds or virus/flu
He is currently in relaspe again to date its been 8 months splenectomy has been talked about he got a nasty case of shingles the adult form of chicken pox so i think his amune system would leave him wide open to other virus of that sort anyone who wouldnt mind posting thier age and sex i would appreacate it alot Thank


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