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Posted by Ben
on October 07, 2000 at 21:01:11:
In Reply to: Re: PORPHYRIA posted by Dawn on July 08, 2000 at 14:09:41:
: : Hi Does anyone here have any info on this disorder and its symptoms and diagnosis...Any info would be helpful. Thank You so very Much...Betty.
: Hello. not sure if my info will help but i would like to try. Im still learning about this disease myself. Well for starters i have (AIP) Acute Intermittent Porphyria. My symptoms are stomache and intestinal spasms. So far the only help i can get according to my Dr. is by having a large amount of blood removed from me each month. Porphyria produces too many porferin cells and causes the blood to become too thick. Im very sensitive to sunlight and any very bright lights. Many medications, alcohol, hormone meds. stress, and pregnancy can all lead to an attack. The attacts are i remission right now but was told that it will come back when i go through menapulse.
: If you can get more info. then this please let me know. Im still known as a Guinny pig for the Drs.with this disease.
I have AIP, diagnosed at age 15, am now 61. I have been told by physicians that carbohydrate loading is helpful, and that I should stay away from excessive intake of protein, such a high protein diet.