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Re: Freeman Sheldon syndrome

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Posted by Ed Madara on October 24, 2000 at 20:50:21:

In Reply to: Freeman Sheldon syndrome posted by Fiona on October 16, 2000 at 05:22:33:

Freeman-Sheldon Parent Support Group
Int'l network. Founded 1982. Emotional support for parents of children with Freeman-Sheldon. Also for adults with this syndrome. Sharing of helpful Medical literature library. Information on growth and development of individuals affected. Participates in research projects. Members network by phone and mail. Newsletter.
Contact: Freeman-Sheldon Parent Support Group, 509 E. Northmont Way, Salt Lake City, UT 84103. Web site: www.fspsg.org



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