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Re: TTP Thrombotic thrombocytopenic purpura


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Posted by Christine Von Raesfeld on October 30, 2000 at 15:13:25:

In Reply to: TTP Thrombotic thrombocytopenic purpura posted by Phil Lacke on October 30, 2000 at 10:37:20:

: Looking for any information on this subject. A relative has been diagnosed with this desease. This person was healthy and within two days traversed from "normal" to ICU-near death at the Marshfield Clinic in Wisconsin.

: Sounds like the current treatment method is by Immunoadsorption.


Hi Phil,
I have TTP and the treatments that I recieve are plasmapheresis. It is basically where they remove my plasma from my blood and replace it with "normal" plasma. Wjen I am undergoing the pheresis I also am prescribed steriods. I haven't heard of any other treatments for the disease aside from Chemotherapy. I have information about the disease if you would like it, please feel free to email me at daizy625@hotmail.com.
Christine



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