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PFAPA syndrome

PFAPA syndrome

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Posted by Donna Cameron on November 09, 2000 at 13:19:50:

In regards to a message posted by Denise on 9/13/00, My son 4 1/2 also has PFAPA syndrome. Fevers every 2-3 weeks
for the past 3 1/2 years. Its seems almost impossible to find information on this. Or even to to talk with someone about it. It took
3 specialist hospitals to dertermine what was going on. I would also appreciate any information you may have for me on this. Also
to talk with someone who has gone thru this.
Thank you
Donna


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