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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by maureen on November 18, 1999 at 08:53:10:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by KN on November 16, 1999 at 15:34:46:

: Carla, my mother was diagnosed with TTP in November of 1998 and I would be very happy to talk with you about this and share experiences with you. You can e-mail me at kimn@surfsouth.com. I had your e-mail address at one point, but this board has a moderator that removed your orginal message and I was unable to respond. There used to be a lot of messages of people diagnosed with TTP or relatives with TTP - but they have been removed. I can provide you with the e-mail addresses of several persons with TTP that I have corresponded with on a weekly basis. Hope to hear from you soon.
: : I am 28 years old. Two years ago I was diagnosed with TTP. As a result of this disease, I had to have a kidney transplant. My transplant was successfully performed on December 1, 1998. THANK GOD!! I am looking for information regarding TTP, especially any information concerning women who have been able to have children after their initial bout with TTP has gone into remission. I am also interested in hearing from anyone who has had to have a transplant due to the TTP. So anyone out there with any information to offer, please reply. THANK YOU!!
hi my mother was diagnosed last week ttp. she had no symptoms other than blod blisters on her legs and hands. doctor has put her on Prednisone and will recheck her platelet count in another week, try that 2 weeks if not he stated probably a splenectomy. she had been taking a bone density enhancer and decided to stop that as that was the only connection she could think of and hates pills anyway. any suggestions????




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