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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by KN on December 09, 1999 at 08:31:37:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by sheila on December 08, 1999 at 10:52:39:

Shiela,

: My mother was diagnosed with TTP - Nov. 98 - after no good response to the first several pheresis of Fresh Frozen Plasma - the doctors wanted to remove my Mom's spleen. Her platlet count was, at that time, 3k. There was only one doctor willing & brave enough to do the surgery, so we decided against it. (By this time Mom was on life support) We had Mom transferred to Emory Univeristy in Atlanta. There they began treating Mom with Cyro-Poor Plasma which is not readily available, but can be obtained by Blood Banks by having it brought in from other states. The doctors at Emory performed the pheresis on Mom twice a day with 14 units of Cyro-Poor plasma each time. Mom eventually began responding to the treatments and she came home on Jan. 5, 1999. Mom is doing real good these days - I can't say it hasn't been an uphill climb at times but I think everyone with TTP finds hills and bridges that they have to climb and cross. I'm not saying that a splenectomy is not the best thing for your Mother-in-law (everyone responds differently to TTP), I just wanted you to know how my Mom overcome the initial episode of TTP without having her spleen removed.
: I hope all turns out well for your Mother-in-Law. Best wishes.



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