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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by jo on December 12, 1999 at 11:58:35:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by stacy on December 11, 1999 at 21:38:39:

Hi Sheila,

I am a year post splenectomy and seem to be doing fine. I had TTP years ago and plasma pherisis worked for me. I had it again 2 years ago and I couldn't shake it no matter what the treatment.
After 18 months and several trips to the ER, I had a splenectomy by scope and have continued to improve. Keep us posted on your mother-in-law"s
progress.

JO
: Hi shelia,

: I just had my spleen taken out 5 days ago. So far I have had no change in any of my blood counts. I felt at this point i had really no choice. I have done a lot of research on TTP and having a spleenectomy seems to help most people. I have found some really good sites on TTP. E-mail me and I can send you the URL's. I hope all goes well for you mother in-law. This is a horrible amd scary thing to have. i personaly feel that the spleenectomy is definately worth the try. If nothing else it will put her into remission this bout. jdhorn@students.wisc.edu

: stacy

: : I would love any information on a splenectomy for the treatment of TTP.
: : My mother-in-law is currently being treated for her fourth recurrance of TTP. In the past, plasma
: : apherisis has typically worked to increase her platelet counts. This time, however, they just won't
: : move -- even after 18 treatments. Looks like she will be scheduled for a splenectomy in the next
: : week. Any thoughts?




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