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Posted by Amber
on December 14, 1999 at 20:59:51:
In Reply to: Trisomy18 posted by Debra Bentley on December 10, 1999 at 20:04:42:
I'm so sorry for your baby grand-daughter. My brother also had a rare syndrome called Cornelia de Lange. While he had many problems, his short life was a gift to us and he will be with us forever in our hearts.
Here is a nice website that offers support and hope. It was built by a woman who is Mum to a Trisomy 18 child.
: 60 Cook Dr D1
: Bad Axe, MI 48413
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