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Re: E.B.

Re: E.B.

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Posted by Ed Madara on January 22, 2000 at 23:28:45:

In Reply to: E.B. posted by art on January 15, 2000 at 05:12:20:

: Are there any known cures of Epidermolysis Bullosa?

There's the Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA)which should be able to advise you of any that may exist. They have about ten local self-help support groups in the USA and have been around since 1980. With a volunteer-run office in New York City, they have a newsletter and regional conferences.

- Ed at the American Self-Help Group Clearinghouse
www.selfhelpgroups.org



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