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ttp response to Valarie!!!!
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Posted by lois
on March 09, 2000 at 13:28:41:
This is Lois. If you would like to talk to someone about this terrible diasease you can e-mail me at
I am so sorry to hear about your daughter. Please feel free to write to me.
I don't have alot of answers for you, but there are really no answers that anyone has, they don't seem to be able to find out what causes this. Please don't feel it was anything that you did, that just is not so.
please write to me.
love & prayers
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