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Re: Thrombotic Thrombocytopenic Purpura

Re: Thrombotic Thrombocytopenic Purpura

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Posted by Jeannie on April 06, 2000 at 00:02:58:

In Reply to: Re: Thrombotic Thrombocytopenic Purpura posted by Kathy Metanczuk on March 09, 2000 at 14:28:24:

: I have TTP and I would love any information on a splenectomy for the treatment of TTP.

Hi there - -

I've was diagnosed with TTP in May of 1995, and have had 1 low level and 1 major relapse since.
The last relapse was in October 1997. After a few months of unsuccessfull aphereisis and steroids
(yuck - bad stuff ;-) I finally agreed to the splenectomy. Boy, wish I had let them do it ealier!

I am now a happliy married newlywed, and pregnant with my first child!

On a differnet note, I hear all sorts of different data about the numbers of us who are afflicted.

I do not have AIDS, never had a transplant, not any hormonal problems that may cause TTP.
I've heard I'm one in a million! Does anyone have any data?




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