It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Message Board
THIS MESSAGE BOARD IS NO LONGER ACTIVE. TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE





Rare Disorders Message Board
Rare Disorders Message Board

  • premature ageing in children - nikki bausman 19:56:19 12/16/00 (0)
  • microdisectomy with plating - rockfinder anna 19:02:41 12/15/00 (0)
  • polycythemia vera ruba - DEE 20:30:54 12/12/00 (0)
  • Happy Appearance Syndrome - Louis Fransen 16:57:17 12/01/00 (0)
  • cronic infeccion in bone - sylvia 15:36:56 12/01/00 (0)
  • High iron level in the liver - Yu Liu 14:00:01 11/29/00 (0)
  • PFAPA, Periodic Fever Syndrome, Recurring Fevers - Lana 19:24:27 11/28/00 (3)
  • sun allergy - Barbara Eva 12:52:32 11/26/00 (0)
  • body temperature regulation - andy parker 07:26:11 11/23/00 (0)
  • My sister has a condition that is unknown Please help - Darren Hall 04:52:40 11/23/00 (0)
  • fvleiden - kathie s 18:07:26 11/21/00 (0)
  • Carotidynia-Pulsating Carotid Artery..anyone have this? - Steph 15:09:19 11/21/00 (0)
  • interstitial scistitis - Jeanne 18:25:03 11/17/00 (0)
  • IDIOPATHIC THROMBOCYTOPENIA PURPURA - jc 23:01:01 11/15/00 (1)
  • nasal sores - Annette 14:20:05 11/15/00 (0)
  • Idiopathic autosensitization thrombotic purpura syndrome? Help - Lee 11:32:27 11/12/00 (0)
  • Hyperhidrosis - Kiwi 13:18:09 11/10/00 (0)
  • PFAPA syndrome - Donna Cameron 13:19:50 11/09/00 (0)
  • TTP - Diane 21:36:12 11/05/00 (0)
  • transversemylitis - annette 11:31:35 11/05/00 (0)
  • Hyperostosis Frontal Interna - Liz 07:31:42 11/04/00 (0)
  • TTP Thrombotic Thrombocytopenic Purpura - June 08:40:03 11/03/00 (3)
  • Optical Nerve Disorder in 4 year old - Anil Sindhwani 07:50:42 11/03/00 (0)
  • Choroid plexus cyst diagnosed in pregnancy - Sabina 01:33:53 11/03/00 (0)
  • Genital sensation - Barbara Smith 20:22:42 11/02/00 (0)
  • TTP Thrombotic thrombocytopenic purpura - Phil Lacke 13:15:33 10/30/00 (3)
  • TTP Thrombotic thrombocytopenic purpura - Phil Lacke 10:37:20 10/30/00 (2)
  • muscle detached from rib... PLEASE HELP! - tarra cunningham 09:54:30 10/29/00 (0)
  • endocrine imbalances - Jac 01:09:26 10/29/00 (1)
  • APL Syndrome - Larry Rowinsky 12:15:22 10/28/00 (1)
  • RARE CASE CALLED 'MORPHIA". - EDWINA ALLEN 23:24:52 10/20/00 (1)
  • Pheochromocytoma - adrenal gland tumor - Robyn 18:51:29 10/19/00 (3)
  • Polymylagia rheumatica - Richard 17:54:17 10/18/00 (1)
  • Freeman Sheldon syndrome - Fiona 05:22:33 10/16/00 (1)
  • persistant nauseau - Sylvia 21:13:22 10/15/00 (2)
  • Mystery skin reaction for 15 years, doctors no nothing, please help!!! - megan 21:40:52 10/14/00 (2)
  • Iris Cysts - Kasia 15:11:40 10/13/00 (1)
  • Any cunning linguist/medics? - susi 19:51:49 10/12/00 (0)
  • Lipase.. Elevation... - Rita 03:14:05 10/12/00 (0)
  • Low Red Blood Cells,, Low Hemcrat, Low Hemgoblin - Rita 03:08:43 10/12/00 (1)
  • PORPHYRIA - does anyone know anyone with it?? - Jessica 17:32:22 10/11/00 (1)
  • ELEVATED GAMMA GLUTAMYL TRANSPEPTIDASE - ANN 17:10:54 10/11/00 (2)
  • ostioitis - Dale Langley 10:23:33 10/10/00 (1)
  • unkown name, but like a PREGNANCY-INDUCED ADDISONS DISEASE (lack of cortisone,severe rash, etc.) - GERI 23:42:04 10/09/00 (0)
  • Pyruvate kinase deficiency haemolytic anaemia - linda mcneely 18:18:57 10/09/00 (2)
  • burning/tingling sensations in head,ears,and arms - bill 00:37:28 10/09/00 (1)
  • TTP Is it hereditary? - Deanna Slate 21:04:47 10/07/00 (3)
  • Arachnoid cyst - Zvone 19:49:33 10/05/00 (4)
  • SUCCINIC SEMIALDEHYDE DEHYDROGENASE DEFICIENCY - Shabir Elahi 18:15:22 9/28/00 (0)
  • adrenocortical cancer - Ann 15:29:11 9/27/00 (1)
  • Unknown stomach troubles - Jill 13:31:58 9/24/00 (1)
  • Progressive supernuclear palsy - Dave Austin 10:01:11 9/23/00 (1)
  • Body Odor (fish odor syndrome or TMAU?) - Jay 20:42:12 9/21/00 (1)
  • Lichen sclerosa - Catt 08:49:53 9/20/00 (0)
  • CAPILLARY LEAKAGE SYNDROME( GOODSON'S DISEASE) - JUNE CLARKE 14:59:08 9/18/00 (1)
  • Perodic Fever syndrome PFAPA - Denise 20:50:30 9/13/00 (6)
  • Cushions Desease - Peggy 20:39:19 9/09/00 (3)
  • Linear IgA - Amanda Hogan 17:32:43 9/09/00 (0)
  • Sezarzy Syndrome?? This is Rare! - J.T.N. 08:43:21 9/02/00 (0)
  • pregnancy with tube through bile duct - Kelly 12:53:27 9/01/00 (1)
  • Tetrasomy x and Pentasomy X - cyndi bradley 22:52:27 8/28/00 (1)
  • white tongue - ralph 10:04:43 8/28/00 (0)
  • Is Polycythemia a hereditary condition? - Cathy 15:14:41 8/24/00 (2)
  • plaque-like mucinosis ( reticular erythematous mucinosis) - Tammy MN 20:57:21 8/22/00 (3)
  • Recurrent Fevers in Children - Wendy 10:50:31 8/21/00 (0)
  • HEMECRANIA CONTINUM - LIZ DAMARO 16:10:37 8/17/00 (0)
  • Cowden's Disease - Tammy 14:34:57 8/16/00 (2)
  • Pernicious Anemia - Roberta 21:43:31 8/15/00 (0)
  • white sores on tongue - Paul 19:05:40 8/15/00 (4)
  • Re: death from thrombocytopenia purpura 12 days after delivery - Chris 21:53:55 8/14/00 (1)
  • death from thrombocytopenia purpura 12 days after delivery - lisa kimzey 14:19:08 8/14/00 (0)
  • TTP - Wise to Get Pregnant? - Chris 23:55:34 8/11/00 (4)
  • Stomach Polyps - Tammy 13:43:30 8/11/00 (0)
  • Polycythaemia - i want to learn more about it. - Alison 00:11:05 8/11/00 (8)
  • Looking for a Psychiatrist who educated with Biopolar/Manic/Drepresion - Yvonne Norton 03:16:07 8/09/00 (1)
  • Lymphedema - Beth 19:21:52 8/04/00 (1)
  • polycythemia - Brenda 14:51:52 8/04/00 (1)
  • Ryder's syndrome? - anon 18:34:29 8/02/00 (4)
  • ????? nuero disease Myastenia gravis, or MS or brain ????? - DONNA TRAYLOR 23:39:51 7/28/00 (0)
  • What can I do? - Jaime D. 23:12:12 7/28/00 (0)
  • Why has this happened to me? - Lynda 14:30:46 7/28/00 (4)
  • Goodpastures syndrome - Tami 13:22:58 7/28/00 (0)
  • Rocky Mountain Spotted Fever - Jeanna 20:35:18 7/27/00 (0)
  • Nonfunctioning glands - Toni 13:23:04 7/27/00 (0)
  • Post liver transplant complications & heart and respiratory disorder - Grace 16:30:43 7/23/00 (0)
  • Undiagnosed condition - Grace 16:29:07 7/23/00 (1)
  • Skin Eruptions - P Holmes 21:39:34 7/21/00 (0)
  • TTP - Lynne 18:34:59 7/21/00 (4)
    • Re: TTP - Chris 12:39:06 8/10/00 (0)
    • Re: TTP - erick 00:07:18 7/23/00 (1)
      • Re: TTP - Kim 16:13:07 7/27/00 (0)
  • cerebellar syndrome (degeneration) - johnboy 18:17:38 7/21/00 (0)
  • Support eGroups for People affected by Rare Disorders - David 05:02:10 7/19/00 (0)
  • polycythemia vera and pleural effuison - pam hunter 07:28:30 7/17/00 (0)
  • Sinus pain, effects of pressure - Vicki 23:44:41 7/16/00 (0)
  • TRANSVERSEMYLITIS~ Any help appreciated!!! - Trish 18:10:34 7/04/00 (2)
  • Unusual Swelling - Martha East 12:47:52 7/02/00 (1)
  • Denys-Drash Syndrome - Maureen 23:44:30 7/01/00 (1)
  • Thrombotic Thrombocytopenic Purpura/TTP - Carmen Roby 12:16:02 6/27/00 (10)
  • Arachnoid Cyst - Carolyn 14:05:44 6/18/00 (1)
  • polycythaemia-need specialist - AARON 22:56:22 6/16/00 (1)
  • GRANULOMA ANNULARE - DIANNA CLAIR 18:44:50 6/15/00 (4)
  • Pseudoxanthoma elasticum PXE info please . - cazzz 21:41:56 6/14/00 (1)
  • reoccuring "rash" or poss. brusing dr's have no ideas - Julie 07:01:56 6/14/00 (1)
  • withdrawel from effexor-xr - nancy 09:31:14 6/12/00 (2)
  • unknown disorder - kim kerby 19:49:45 6/10/00 (0)
  • polycythemia and hydrea - tommi 00:25:36 6/10/00 (1)
  • angiolipoma - bill 22:24:26 6/09/00 (3)
  • IgA deficency - Jennifer 12:56:14 6/07/00 (1)
  • Attn: all ttp people and all others, 'On pred and losing weight' - cherw 00:52:16 6/07/00 (0)
  • Adhesives - Rachel 20:53:57 6/06/00 (0)
  • Ollier's Disease - Claire 11:42:12 6/06/00 (0)
  • muliple hemangioma of the spine/organs - kathleen b. 09:55:08 6/02/00 (1)
  • multiple hemangioma of the spine organs - kathleen b. 09:53:48 6/01/00 (1)
  • help!!!!!!!!!!!!!!!!!!! - wendy candiano 08:40:30 5/29/00 (1)
  • Dermatomyositis,Sicca Syndrome, Rheumatoid Arthritis - christy 11:49:00 5/28/00 (1)
  • TTP on the internet. - Dale 23:23:59 5/26/00 (1)
  • NEED RARE BLOOD IN ASIA- OPERATION- HELP! - Kazuko Osawawa 08:50:32 5/26/00 (0)
  • when i look out of my left eye there is a dark oval spot that appears everywhere I look. It has been this way for at least two days. - jeremy 11:31:53 5/25/00 (2)
  • MYRLOFIBROSIS - GENE 11:30:39 5/25/00 (0)
  • Idiopathic Pulmonary Fibrosis - Debbie 16:14:49 5/16/00 (1)
  • vomitting, tightness in chest - jj 22:18:01 5/13/00 (1)
  • Linear IgA of Childhood - Stephanie Sams 10:21:51 5/12/00 (0)
  • TTP - Diane 18:19:19 5/06/00 (5)
    • Re: TTP - Christine Von raesfeld 16:38:55 6/07/00 (4)
      • Re: TTP - diane 21:40:35 6/19/00 (2)
        • Re: TTP - Brian 23:40:47 8/08/00 (0)
  • polycythemia vera - Rick T. 19:52:48 5/04/00 (5)
  • Searching for people with Hartnup Disorder - Linda Cain 06:40:26 4/30/00 (1)
  • Big Adenoids - Skye 16:36:23 4/28/00 (1)
  • Reaction to fluorescent lights and itching - Kathy 13:28:18 4/24/00 (0)
  • Ear Getting Too Large - Ann 22:20:27 4/21/00 (0)
  • SYNDROME OF SNEDDON - ELENA 10:04:26 4/21/00 (0)
  • Rare dry skin disorder - dkronnick 21:32:13 4/15/00 (1)
  • TTP in Pregnancy - Susan Hansen 17:03:27 4/15/00 (1)
  • Thrombotic Thrombocytopenic Purpura / TTP - Tarika Blizzard 01:00:27 4/13/00 (13)
  • lumps on forehead - matt 04:18:07 4/12/00 (1)
  • ttp - tanisha 19:33:19 4/09/00 (2)
    • Re: ttp - cherw 23:01:31 4/09/00 (1)
      • Re: ttp - JO 17:26:03 4/12/00 (0)
  • acromegaly? - marie 16:46:46 4/09/00 (0)
  • SWEET'S SYNDROME - Maree 08:21:30 3/30/00 (0)
  • Xeroderma Pigmentusem - Marilyn Mitchell 20:03:24 3/27/00 (1)
  • prednisone - BILL LIZ 10:33:40 3/22/00 (1)
  • thrombocytopenia - Kathy 20:15:34 3/21/00 (4)
  • irritation feeling in chest - Wanda 07:19:01 3/20/00 (2)
  • knee pain meniscus - Gage 21:22:46 3/19/00 (0)
  • Need Medical Help - Shannon Coke 00:46:28 3/19/00 (2)
  • Bullous Pemphigoid - Liz 23:00:15 3/13/00 (7)
  • Sweet Syndrome - Jerry 16:31:15 3/13/00 (5)
  • looking for cause of death of my mom - Lauren 23:19:24 3/12/00 (3)
  • mirror imaging disorder - kimberle routt 21:56:50 3/10/00 (0)
  • ttp response to Valarie!!!! - lois 13:28:41 3/09/00 (0)
  • Help me fight TTP, my daughter died at 12 - Valarie Kincaid 13:04:19 3/09/00 (7)
  • ttp response to Melodee!!!!!!!!!!! - Lois 19:11:17 3/08/00 (0)
  • unknown disorder - kristy 16:51:40 3/03/00 (0)
  • rare genectic disease - Donna 16:20:25 3/01/00 (1)
  • TTP RESPONSE - Lois 00:35:13 3/01/00 (0)
  • Persistent Nauseau - Michael Hughes 11:36:51 2/29/00 (2)
  • Incontinentia Pigmenti - Kerry 10:22:28 2/29/00 (5)
  • Persistent Coated Tongue - LYNN 09:02:38 2/29/00 (4)
  • granular substance - Ann 14:12:02 2/27/00 (0)
  • rare sleeping syndromes - kb 15:18:49 2/26/00 (3)
  • Please help!!!!!!!!!! - m 11:52:48 2/24/00 (3)
  • CHP and HC - Carrie 04:30:09 2/22/00 (4)
  • red rash on palms - John Kincaide 21:17:32 2/20/00 (0)
  • Rare congenital heart disease - Luba 04:28:19 2/19/00 (3)
  • Floppy Child - Cathy 13:42:19 2/15/00 (0)
  • semantic pragmatic disorder - monika bhatia 20:43:39 2/13/00 (1)
  • 13q+ and hypothyroid - Jose 21:20:56 2/11/00 (0)
  • meningiomer - krs 19:50:22 2/10/00 (2)
  • Von Willibrand's - StephenP 11:29:43 2/10/00 (2)
  • polycythemia - pat g. 15:52:32 2/07/00 (5)
  • Leaking Capillary Syndrome(Goodson's Disease) - A.Suggs 20:25:21 2/06/00 (1)
  • Intussusception - Denise 01:33:15 2/05/00 (0)
  • MY DICK, i need some advice im a teenager - MR S 18:29:14 2/03/00 (3)
  • Basal Cell Degeneration - Judith Pollack 14:39:48 2/02/00 (0)
  • THROMBOTI THROMBOCYTOPENIC PURPURA - DOMENIC 15:12:03 2/01/00 (1)
  • ttp.response, - LOIS 20:54:56 1/31/00 (0)
  • ttp - Tallada 20:05:28 1/31/00 (1)
  • Please help my dad - Julie 17:55:34 1/28/00 (5)
  • tingling toes & swelling ankles..tender skin in lower leg - CINDY 16:28:58 1/24/00 (3)
  • RSV - Tricia 16:23:48 1/21/00 (0)
  • Semen Allergy? - Matoaka 17:46:36 1/20/00 (7)
  • tingle right arm hand shoulder - Roger M Singletary 00:30:55 1/18/00 (2)
  • Re: Polymylagia - Harry 19:57:34 1/18/00 (2)
  • Polymylagia - Marci 11:21:23 1/17/00 (2)
  • IgA & IgG immune deficency - kristi 02:54:03 1/17/00 (0)
  • ttp - Lois 19:48:47 1/16/00 (14)
  • ankle wounds caused by Hydrea - a posniak 12:17:15 1/16/00 (3)
  • E.B. - art 05:12:20 1/15/00 (2)
  • Severe gastro attacks...why? Please help! - Jenna 15:25:30 1/12/00 (6)
  • ELEVATED SEROTONIN - Debbie 16:25:22 1/04/00 (7)
  • atrophic papulosis of Degos - Judith 06:45:51 1/03/00 (2)
  • Sarcoidosis - Russ T 22:39:34 1/02/00 (2)
  • an urgent plea for help-re:HICCUPS - edna aphek 04:49:06 1/01/00 (4)
  • Systemic mast cell disease and or multiple angiolipoma - Brian Maskell 23:30:54 12/30/99 (8)
  • LIPODYSTROPHY - Isa 09:42:48 12/30/99 (2)
  • Undiagnosed food metabolism condition (long) - jdwilliams 22:08:50 12/23/99 (12)
  • Perthe's Disease - Kim 11:12:32 12/20/99 (0)
  • Rheumatoid Athritis - Patricia Mooney 21:45:57 12/19/99 (1)
  • Unhealing Bones - Cathy Heilman 16:10:44 12/18/99 (0)
  • Macro Phallus Syndrome - Janet 01:09:18 12/17/99 (0)
  • Idiopathic Thrombocytopenia Purpura - Diane Robertson 15:11:29 12/16/99 (6)
  • PORPHYRIA - Betty 22:20:31 12/15/99 (4)
  • Please help my dad - Amber 18:27:34 12/14/99 (2)
  • hyperandrogenism - Beverly 19:16:48 12/13/99 (3)
  • Trisomy18 - Debra Bentley 20:04:42 12/10/99 (7)
  • wilson's disease? - Diane 23:12:12 12/08/99 (2)
  • Breath Holders Syndrome - G. Stevens 20:30:00 12/08/99 (0)
  • anitbodies to medications - Gail 22:40:22 12/05/99 (0)
  • Brain leisions - Dee 08:26:55 11/23/99 (9)
  • Amyloidosis - Razzle 02:47:28 11/23/99 (0)
  • NEW NOTICE >> - Rare Disorders Message Board Moderator 08:59:45 11/18/99 (0)
  • Olivopontocerebellar Atrophy - Kat 15:09:41 11/17/99 (0)
  • xanthelasma - Ellen MacKinnon 10:55:23 11/17/99 (1)
  • Cortical Basal Degeneration - Edith Mountain 00:09:55 11/16/99 (2)
  • Thrombotic Thrombocytopenic Purpura - Carla 20:51:45 11/15/99 (36)
  • Excessive androgens in women and their effects - andrew zubriczky 11:50:31 11/11/99 (1)
  • pernicious anemia - lee moore 18:37:07 11/09/99 (2)
  • malignant atrophic papulosis of Degos - Judith Calder 11:33:26 11/05/99 (3)
  • cushions syndrome - Dulci 09:47:40 11/05/99 (1)
  • Spinal Arachnoid Cyst - Melissa 20:57:28 11/02/99 (5)
  • Re: PARAPSORIASIS- Pre Mycotic Erruptions - Judith Calder 11:16:12 11/05/99 (1)
  • C. Thomas Wild - ADHD Autobiography - Rare Food Additive Sensitivity Reported - No name 21:21:27 10/31/99 (2)
  • blue skin - MaryAnn 19:23:05 10/26/99 (1)
  • giant cell tumor with pulmonary metastases - CarolynB 11:33:19 10/22/99 (1)
  • ANTIPHOSPHOLIPID ANTIBODY SYNDROME - Ashley 17:24:07 10/21/99 (9)
  • GRANULOMA ANNULARE FOR 13 YEARS - CAROLYN 12:04:48 10/15/99 (22)
  • vinergar problem - sandra luk 20:40:59 10/14/99 (3)
  • Central Nervous System Degenerative Disease, HELP - Deborah 14:07:47 10/11/99 (3)
  • Linear Iga Disease - Lori Bolanos 12:56:34 10/11/99 (2)
  • men 1 pregnancy - Cheryl 20:51:47 10/03/99 (1)
  • Legg Calves Perthes Disease - Shirley Thomas 20:51:14 10/03/99 (6)
  • TTP - Annette Argo 12:57:04 10/03/99 (9)
    • Re: TTP - Christina 15:38:07 2/03/00 (3)
      • Re: TTP - Christine Von Raesfeld 17:10:23 6/07/00 (2)
        • Re: TTP - Carol Marcotte 05:48:49 12/22/00 (0)
        • Re: TTP - Yvette 23:02:11 8/25/00 (0)
    • Re: TTP - Lucette 15:16:52 11/23/99 (0)
    • Re: TTP - Mary Horton 22:13:19 11/04/99 (0)
  • human parvovirus - kristin 16:10:46 10/02/99 (5)
  • polycythemia vera - Syd Sayers 16:53:11 10/01/99 (12)
  • polyarthritis nodosa - mjmiddlebrook 16:43:22 9/30/99 (0)
  • Blood disorder Cronic DVT's - Kevin 03:27:52 9/28/99 (9)
  • SYRINX of spinal cord - DEE DEE 22:43:27 9/25/99 (5)
  • Verdnig-Hoffman Desease - Oleg Moysov 14:48:06 9/19/99 (2)
  • Mastocytosis - Debbie S 20:06:03 9/18/99 (2)
  • sweet's syndrome - Cathey Attwood 12:54:59 9/18/99 (11)
  • Tarlov Cyst - In Pain 00:28:55 9/18/99 (4)
  • Welcome to the Rare Disorders Message Board - Webmaster 13:31:17 11/28/98 (7)


  • All times are GMT -7. The time now is 05:29 AM.



    Site owned and operated by HealthBoards.com™
    Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!