Re: i too have rsd
Re: i too have rsd
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Posted by Shelley
on November 29, 1999 at 00:12:09:
In Reply to: i too have rsd posted by kt bouton on November 23, 1999 at 21:50:08:
My name is Shelley. I am 33years old and I too have RSD. I can completley understand the "All in you head problem" My mother in law was the worst, then next was my work -- needless to say I am unable to work and it is now 2 years later. At the advise of my attorney I no longer communicate directly with my(previous)employer. If they want to know anything my attorney now answers the questions. They had me tears several times. It got to the point where I was feeling guilty about getting hurt. Like - If I coouldn't change one thing in my life it would be that! Who wants to have chronic pain? No Thanks! I had a much better life and a fantastic career before this freak accident changed my life forever!!
I have got a terrific family Dr as well as a great Neurologist who both back me up 110%.
I went out of network to go to my Neurological group here in Phoenix AZ, BARROWS NEUROLOGICAL. I was also in line for the MAYO CLINIC in Scottsdale as well. I applied for SSI and was accepted my 1st application. That is rare indeed-but I had alot of testing documentation and my Drs as well to support me. I will become Medicare eligible in April 2000.
Hopefully you will get, or possibly already have, a good support structure by your Drs - if not, you have the right to change them. I know it is hard because of the workman's comp regulations. Do you belong to a Union? Do you have an attorney for your protection?
From what I understand once you have RSD it is forever. You may have times that are much better or worse than others. I find that speaking to others can be quite helpful. I too am leary about giving out email address so just post on the board if you want to talk. Good Luck!!