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Re: New Patient with RSD

Re: New Patient with RSD

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Posted by Vic on January 05, 2000 at 17:57:14:

In Reply to: New Patient with RSD posted by Pat R on January 05, 2000 at 06:36:52:

: I was diaganosed with stag3 RSD on my right side and stage1 on the left. I am seeing both a orthopedist and neurologistand am on neurontin. I also havehad the stellite blocks on both sides. My problem is that the swelling of my hands has gone down, but the pain is still almost unbearable at times. I will have a good day, then a very bad day. People look at me as if I am making this up because other than a slight claw hand, it is unoticable. How do I handle this? When I have the rsd in full force, I have to go to bed as it is so painful. Not enough people are aware of this horrible disease, nor do they understand it, even when you explain it to them. Can anyone help me? My friends and even some of my family are beginning to believe I am a hypochondriac. I have been diaganosed both by my ortho and neurologist and have been tested.
: Does anyone else have the same problem? I also find that I tire very easily, is this part of RSD?


I am also an RSD victim. I was dx with it afew mos. ago. I pretty much feel the same way you do. I however have it in the foot and it shows, Very discolored, cold and swollen most of the time.
I have been out of work for over 8 mos. now I never hardly leave the house only when I have too! It just hurts so bad to walk inside of the stores with the hard concrete floors so I try to just stay home.

Hang in there. Just let them all think what they want you know it hurts and try to think about yourself and healing. I stay away from the ones that act like it is nothing :)




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