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Re: losing the fight

Re: losing the fight

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Posted by Tammy on January 22, 2000 at 18:45:20:

In Reply to: losing the fight posted by Cathy on January 21, 2000 at 05:48:18:

: I am losing the fight with RSD and if I don't find some kind of teatment this monster will win. I would like to hear from other people who have had treatments and options are running out. I need to talk to someone who might know of a treatment that will work that I haven't tried

: I have had RSD for 6 years...it isn't as bad as alot of people's, from what I read here...It's extremely painful and hard to live with, but I've gotten over the debilatating stage...I have learned to rest when I have the very first pang of pain, and rest my leg and arm immediately...I also
my medication as soon as it starts...I have learned that if I only take the pain medicine when it hurts, or only when it's really painful, I have set myself up to fight a losing battle...I have to take the medication AS SOON as it starts, and keep taking it every six hours until all symtoms
gone...sometimes it can be a couple of days, or sometimes it can be a week or a month...I never know. I know you said that you're losing the battle, I'm not sure what you mean, exactly...are you just debilitated with the pain, or has it started effecting your immunity...not saying one
is worse than the other, I just want to try to think of what would help the most...Everyone laughs at me because there are days when I actually take 3 baths a day...my baths are not just baths, but EXTREMELY HOT baths...once I get cold set in, what feels like, my bones...the only
way I can get back to a with-standable degree, is to get the heat back into my leg or arms...I just keep plugging along, and have worked through it...I grew up with 4 brothers, and all their friends, and we have all gone through some very painful things, and I think that actually helped,
because my tolerance is higher than alot of people I know...My doctor said that has helped. I take ultram, which is a non-narcotic pain medicine that seems to help some people greatly, with nerve disorders...my doctor keeps putting me on anti-depressants, but I don't take them
because I don't like the side effects...I have been diagnosed with chronic anxiety and panic disorder, and my doctor feels that, somehow, is related to the RSD...I wish you all the luck in the world, and hope that maybe SOMETHING I said may be helpful...if you want to talk more, or
answer me back, just post it and I'll get back to you......Tammy


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