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Re: Reflex Sympathetic Dystrophy

Re: Reflex Sympathetic Dystrophy

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Posted by Tammy on February 10, 2000 at 23:36:36:

In Reply to: Reflex Sympathetic Dystrophy posted by Sam G. Shannon on February 10, 2000 at 11:40:08:

: I was dx with RSD in 1983, since then my life has been a roll-a-coster of active disease followed by remission. Always the disease seems to worsen, never returning to its previous point. My problem is that I was injured while on active duty. Thus the VA will only look at the injury to my hand, not the progression of the disease. In 1992 I began to have CNS symptoms (seizures and tremors). In 1995 I began to have renal symptoms with blood in my urine but the IVP and cystogram were normal. In 1998 I was dx with RSD in my left leg. The physician prescribed STADOL for the pain. My symptoms worsened and spread to my right leg. I have swelling so bad that the skin cracks and bleeds. The pain worsened, so I was seen by physicians within the VA system. The diagnosed me with RSD in my left arm, left leg, right leg, and right arm. I have been treated by the VA's pain clinic, or else I would never sleep. Finally, this year I developed vision problems. I see double and my vision is blurred. I was told to "pray" the disease got better because my vision is not correctable with glasses. Still the VA only considers my hand injury. I am currently on Neurotin, Depakote, Cardizem, Lasix, Potassium Chloride, Remeron, MS Cotinine, M Sulfate, multi-vitamins, and a Baby Aspirin. Has anyone else had an expewrience with RSD spreading and has anyone hasd an experience with RSD and the VA system?

: Hi, Sam, I'm sorry, I don't know a whole lot about VA rules and regulations....I know worker's comp is giving me just as hard of a time...Originally hurt my arm at work, worsening an old injury...and worker's comp has fought it every since...They don't recognize that the RSD in my arm is due to my injury at work...all they see is that I already had rsd in my leg, before it showed up in my arm...Thank God, the comp judge has had it with them, and keeps insisting they pay. Other wise, I would be screwed. Didn't know, until I found this health board, that it can affect your organs, also...have had problems for past 2 years that dr's can't figure out...I don't want to seem forward....but if you need to talk, God only knows, I do...email me at tweety@mvip.net I would be happy to talk to you about this ever-so-wonderful disease...Tammy


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