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hello first time posting / reading here...wow...sad i'm not alone..yet glad someone understands

hello first time posting / reading here...wow...sad i'm not alone..yet glad someone understands

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Posted by sis on April 01, 2000 at 22:11:33:

how do you cope? been suffering for years....finally found doctors who wanted to get to the bottom of pain...
unfortunately they've found and diagnosed positivly at least 5 connective tissue and joint disorders in my body

all this time i thought it was arthritis and fibromyalgia...well it was..along with RSD, TOS, CRPS, SLE, etc.

Now on alot of meds, major ones that are helping cope with pain are Effexor, Neurontin, and Ultram and sometimes
when it's horribly bad...Vicodin or percocet.

Would take way too many injections to help ease pain...after getting an injection in my shoulder joint..the doc said
"now ...there ...how's that feel ...pain all gone...?" I looked at him and broke down in tears b'cuz I knew if it were just
joint/arthritis related...the pain should have subsided. But from ear lobes down to lower thoracic [front & back] and arm
being in constant pain........and having CNS and PNS involvement with Lupus...it's getting the best of me at times.

need to go...typing caused alot more pain..and brain fog is settling in due to trying to focus and write to this message board.

Wish you all didn't have to know..what it's like to live like this.



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