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Re: RSD

Re: RSD

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Posted by Lee Ann on July 03, 2000 at 10:48:24:

In Reply to: RSD posted by hila on May 15, 2000 at 18:43:06:

: Anyone with information please email me...
: I want to know all I can about this disease....
: PLEASE HELP
Hila,
The best thing you can do is become an expert on RSD, because there will be many times doctors
and physical therapists who treat you will not be educated on the disorder. They will act as though they
are because for some reason they hate to admit a lack of knowledge. This can be a real danger to you.
It is also hard for medical professionals to keep up with the current research on every disorder, but I
feel strongly that once they start seeing a patient with a patricular problem, it is their duty to learn as
much as possible about it. The same goes for us patients suffering from disorders. A great place to start
is the RSDS Association of America at www.rsds.org read the section on clinical guidelines for treatment
and diagnosis. I recommend you print it and keep a copy. It is one of the most comprehensive descriptions
of RSD their is out there. Don't be frightened by some of the descriptions and pictures posted there. I have
lived through some of it, if it does happen to you, you get through it. Another site, although complicated and
very detailed is another RSD patients story and a lot of info on how the disorder works can be found at
http://home.ptd.net/~paulbarb/rsd.web.htm read the part which tells Barbara's story. It can give you a lot
of strength to see what she has been through and how she handles it. I recommend you get a medical dictionary
it will help you undertand some of this stuff. Remember the best thing you can do is be educated on RSDS .
Hope this all helps. Lee Ann


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