Re: Spinal Cord Stimulator/RSD
Re: Spinal Cord Stimulator/RSD
[ Back to Messages
Posted by Maria
on July 25, 2000 at 09:52:43:
In Reply to: Re: Spinal Cord Stimulator/RSD posted by Lee Ann on July 24, 2000 at 20:51:40:
: : : : : Sorry, I don't have any personal experience with an SCS, since I decided not to get one, but good luck with it!!! :-) And please, whatever you do, if it doesn't work, DO NOT get a sympathectomy. They're terrible for RSDer's, and 4/5 of the time, they harn people more than they help them.
: : : : : Take Care, and Good luck!!!
: : : : : ~Tiff
: : : :
: : : : Hi Tiff, Thank you for your response...Thats scary..because my Dr. has recommended that next if this SCS doesnt work...Thank you for the input.take care...Maria
: : : Maria,
: : : Hi! I hope your SCS works as well as I know they can when done correctly. Good luck with your surgery. I do have to agree witth Tiff on the sympathectomy. I had one at about the two year point. Ideally it should have worked well because the sympathetic blocks worked so well for me, but it only gave me relief for about 2 months and then the pain was back full blown. Now I just have to deal with the unpleasant after effects of the sympathectomy. Believe me the not sweating is not as good as it sounds. You sweat twice as much everywhere else and you over heat easily. Plus I have residual pain from the sympathectomy itself. If there is one thing I could undo that I have done in my search for pain relief it would be the sympathectomy. Think carefully before you do it. If your sypmathetic blocks don't give you excellent relief, DON'T DO IT AT ALL. I do understand how desperate we get for pain relief I myself have tried it all, but don't jump into a neurodestructive surgery without very careful consideration. I will pray for you. Here is wishing you pain free days. Lee Ann
: : Lee Ann: Yes, I believe that a sympathectomy would be a mistake for me as well. I had a hard time making a decision for the SCS. But, I feel that this may help me. I hve tried at least 25 medications with no significant results. I have tried Epidurals, cortisone shots, Physical Therapy...on and on..the list goes...But I'm hopeful that the SCS will at least help me with endurance. My legs are weak after only walking short distances...so...and the cramping pain in the feet and legs is just about done me in. I'm not sure when i will be going for the procedure..I'm hoping soon...to get on with it. Thank you for your prayers...we all need a support group of some kind and so far this has been a pleasent one. Thank you all...for your responses..Maria
: Hello again. My heart breaks everytime I hear someone talk about having RSD in their feet or legs. I have it in my arm and that is bad enough. I can only imagine it to be a thousand times worse to have it in the lower extremeties because all of our bodie is supported by them. With my arm, I don't have to walk on it and I can protect it more easily. I feel for you. If you are interested in joining a support group, I just recently joined one and it seems like they are a wonderful group of people. They talk, support, and share info. You can check out their homepage at http://www.homestead.com/RSDsLists/ The site has all the info you need to contact them. Take care of yourself and let me know how the SCS surgery goes. Good Luck. Lee Ann
Lee Ann: Hi, Thank you for your help...I know it is probably worse to have RSD in the lower extremeties, BUT...pain is pain I think...I feel like it is bad for us both...I will let you know how the surgery goes..thanks for your sincere concern..I appreciate that. Best Wishes to you and your family...Love, Maria