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Re: TOO YOUNG TO BE GOING THROUGH THIS.... RSDS!!!!!

Re: TOO YOUNG TO BE GOING THROUGH THIS.... RSDS!!!!!

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Posted by Maria on August 01, 2000 at 11:15:17:

In Reply to: Re: TOO YOUNG TO BE GOING THROUGH THIS.... RSDS!!!!! posted by Lee Ann on July 30, 2000 at 10:27:54:

: : HI.. I'M STACEY 20... HAVE HAD TWO SURGERIES ON MY FEET.. AND NOW I'M IN MORE PAIN THAN IMAGINABLE..
: : MY FEET SWELL THEY TURN DIFFERENT BLUE AND DARK PURPLE ON MY ARCHES (SURGERY LOCATION)
: : I ALSO HAVE A REALLY BAD BURNING SENSATION THAT RUNS DOWN THE SIDE OF MY LEGS AND UPPER THIGHS..
: : I DONT KNOW WHAT TO DO.. I'VE BEEN TO DRS AND ONE TOLD ME I HAD THE SYMPTOMS OF RSDS.. I STILL DONT KNOW EXCACTLY WHAT IT MEANS..
: : I FILED FOR DISABLITY... AND THAT DIDNT' WORK.. I HAVE NO MEANS OF INSURANCE..
: : PRE EXISITING CONDITION SO THEY CALL IT..
: : ID ONT KNOW WHAT TO DO.. I SEE A SHRINK BECAUSE I'M SO DEPRESSED AND ALL THE WHILE EVERYONE (INCLUDING MY BOSS) TELLS ME ITS ALL IN MY HEAD AND THAT RSDS DOESN'T REALLY EXIST.
: : PLEASE HELP ME WITH ANY ADVICE.. INFORMATION.. AND INSURANCE LOOP HOLES.. ANYTHING'

: : THANKS STACEY

: Stacey,
: RSD is not in your head, it very definitly exists and millions of us suffer from it. I have had it for 8 1/2 years now. I was only 29 when I got it. Don't let anyone tell you you are crazy because you are not. First go to www.rsds.org and read and print out their clinical guidelines for diagnosis and treatment of RSD. You can use these to educate those around you. Do you live with parents or a husband? Do you have anyone for support, both emotional and financial? If you don't qualify for social security disability because of lack work credits, there is another type of disability you may qualify for thru the social security office, it is for lower income people. Stacey, how did you get RSD? That could make a difference in what you should do. Was it a surgery, car accident, or work injury? If so you may need to get an attorney to help you get medical care. You may need to get one to help you get disability to. Call an attorney and tell them your story see what they say. How long have you had the RSD?
: that is very important in the treatment. If you have had it for less than a year your chances of getting it into remission or curing it are much greater with proper treatment. You have to find a good pain specialist who is familiar with RSD and treating it. These docs are usually anesthesiologists. Call around, ask your regular doctor to help you find one, but find one soon. If you answer some of these questions, I may be able to help you find the help you need. I will do my best. I can't stand to see anyone struggling with this disorder alone, especially someone so young. Be Strong, Lee ANn

Hi Stacey And Lee Ann, Boy I dont know about you Lee Ann..but when I hear about people saying its all in our heads...I get really angry...I know it is just ignorance. Stacey...This is a terrible thing to go through, I have had it for almost 3 years now. It has affected every part of my being! I have it in my legs and feet...also along with the Fibromyalgia and Raynauds Disease..I never know which of these is causing my many symptoms. I am going for a Spinal Cord Stimulator soon...But back to you Stacey..NEVER let someone tell you it is in your head!! I agree with everything you said Lee Ann...I had to get a couple of attorneys to help me..It was one of the smartest things I did. Everything for me so far has worked out...but it took almost 3 years... Don't give up Stacey..Disability always denies you on the first 2 applications. If you know in your heart that you deserve this help...Keep going to every Dr. and every lawyer til you get the help you need! Best Wishes To You Both...Maria



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