Re: An RSD Happy Ending
Re: An RSD Happy Ending
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Posted by cindy
on October 27, 2000 at 11:05:57:
In Reply to: An RSD Happy Ending posted by Beth on October 12, 2000 at 19:17:05:
That is great to hear. We all need to hear good endings like this. I deal with RSD and while i am considered to still have a chance of finding my way to remission it has been such a struggle. I am not one to take alot of meds and so when the dr gives me 5 perscriptions i normally just say oh well and then go to the working out and exercising trying to FORCE myself to get better let me just say it is NOT working. I tried neurontin for a while and several others but the side effects were far worse than the pain etc..
i just found out today that my RSD has spread to my neck it started in my left hip, then went down into my foot which is freezing cold all the time and now into my lower back then jumped to my neck. UGH!!! I am hoping the MRI says it is not RSD in my neck my neck kills me but.. i am hoping it is just something else.
Thanks for sharing your story gives us hope.
: I wanted to post this message to offer a little hope to those of you out there suffering from RSD. I was diagnosis last November with RSD, following a minor injury to my little toe. I was lucky to be diagnosed within a week of developing symptoms. I had two unsuccessful nerve blocks. My doctor treated me with aggressive doses of neurontin, elavil, darvacet, and clonidine (catapres patch). I began to see results after being on the neurontin for about two weeks. Within two months I was ready to begin physical therapy. I was in PT for months and finally declared in remission in late April. What a great day that was! I hope that my story helps others out there who are having trouble seeing light at the end of the tunnel. When I was first diagnosed, I immediatley turned to the Internet for additional information. I must say the chat boards I read scared me to death, with all the talk of years of excruciating pain. I realize that that is the reality for far too many of us, but there are some happy endings, too, that newly diagnosed folks might like to see. I do not mean to suggest that my ordeal was easy or trouble-free, quite the contrary is true. My doctor tells me I suffered from a particularly acute case of RSD, with a very quick onset and a very intense level of pain. I lost my job during the ordeal as well. But I came through it whole and am all the better for it. Hope everyone has my luck!