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Re: Tethered Spinal Cord

Re: Tethered Spinal Cord

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Posted by Sue on June 09, 2000 at 07:01:23:

In Reply to: Tethered Spinal Cord posted by Adelle Cottrell on June 02, 2000 at 23:15:31:

: My 6 month old daughter has a tethered spinal cord. Are there any parents out there whose child had the same diagnosis? What was done? Surgery? Thanks in advance for your help. Adelle

Hi Adelle
My name is Sue and my 23 month old daughter had a detethering surgery on the 9th of May this year. First of all if you were thinking of delaying surgery, my only advice is DONT. Any damage caused through the spinal cord being stretched as your daughter grows can only be too much, and it will almost definately cause damage. Rhiann is 4 weeks post operation and only the occasional time do I see her flinch in pain. Of course the operation and the days after were hard, make sure you insist on painkillers, Rhiann had "stunned rabbit syndrome" in that she was to scared to move or even cry as she was in so much pain, but the nurses all thought that she was being so good. One doctor went nuts when she saw Rhiann and blasted the nurses for not giving her any painkillers. Now I am so glad that I insisted on the surgery as within six months, as well as already having lost sensation and most movement in her left foot, Rhiann would have most certainly lost bowel and bladder function as well.Sorry this is long winded but I cannot think of any other way to put anything.
Thanks Sue



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