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Re: spinal bifida

Re: spinal bifida

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Posted by Diane Cole on July 21, 2000 at 19:17:30:

In Reply to: spinal bifida posted by PATTY JOINER on July 20, 2000 at 20:39:55:

: My daughter age 14 was just diagnosed with spinal bifida. A mild case so the doctor says. She has also been diagnosed with a mild case of scolosis. How worried should Ibe since she has no other health problems. From the information I have read, I should be very worried about my daughter. Any advise? Could this be something that is a mild case and not to worry about and just watch?

What she has is probably spina bifida occulta...the mildest form of spina bifida. There are many websites on this and if you do a search you should be able to find out alot. I have a daughter with myelomeningocele sb...one of the more severe kinds. She still leads a fairly normal life except she uses braces on her legs to walk. If your daughter is 14 and hasn't had any problems yet she may never have any. One of the websites I belong to is www.egroups.com/groups/Livingwithspinabifida ... a great place to post a letter or find links to other sites. I certainly hope she is well and good luck in your search for knowledge. Diane




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