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Re: SPINAL CORD SYRINX/OSTEOPHYTES

Re: SPINAL CORD SYRINX/OSTEOPHYTES

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Posted by Carol on October 01, 2000 at 12:46:53:

In Reply to: SPINAL CORD SYRINX/OSTEOPHYTES posted by NIKI on September 04, 2000 at 22:26:43:

: I HAVE A CYST AT C3-C5. AT C6-7 I HAVE BONE SPURS. I HAVE DYSESTHESIA PAIN. I'M PARALY.ZED FROM THE CHEST DOWN. I NEED TO KNOW IF THERE IS ANYTHING I CAN DO ABOUT THE PAIN. I HURT SOOOO BAD. I WISH A DR. COULD HELP ME.
Sorry to hear your in such pain,I have syrinx at C4-7 an I have numbness an severe pain too,I ended up seeing a pain doc an I'm taking Oxycontin 40mg twice daily,Norco 4 aday,Neurontin 1200 mg aday,elival 50mg abedtime,Valium 10 mg at bedtime,Vioxx 25mg aday,Now my pain is better controlled,I still have pain but can live better with this conbination,I have have to have pain meds increased alot this past year but please if you haven't already try a pain doctor or if your doc is willing to give meds,ask him about these I mentioned,they are all for pain,the elival is antidepressant but they have found it helps many with pain an the neurontin is for seisures but they have found that to help with the burning pain we suffer,also check out our site at www.geocities.com/sm_acm/ an read the stories from others who have SM an there is a message board there too so maybe others there could tell you what they are taking,I hope you find relief because this is the worse pain I have ever had in my life,what the cyst does to your spinal cord an damages the nerves an the pain is just awful,One specialist in SM told me this type of pain is very hard to control so I hope you can get some relief,I don't think none of us are ever painfree but it can be helped to let up some,Good Luck,Carol


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