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Re: Looking for other SMS sufferers??

Re: Looking for other SMS sufferers??

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Posted by John McCullough on October 19, 2000 at 00:03:03:

In Reply to: Looking for other SMS sufferers?? posted by Shauna on January 05, 2000 at 13:35:50:

: Hi, Jimmy!

: My husband has had SMS for a little over 4 years. His original problem was multi focal dystonia. He is now on full oxygen and has been going through the new treatment of IVIG exchange. This has helped trememdously in his breathing problems. He still cannot walk and needs help getting in and out of bed, in and out of a vehicle. His balance is completely off. I wonder if your mother is having any same problems. John got sick when he was 36 and has been progressing since then. He is currelntly being treated at a VA clinic. I would appreciate any help with your mom's latest treatment.


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