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Re: Post Radiation Myelitis

Re: Post Radiation Myelitis

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Posted by Pat on November 20, 2000 at 08:34:40:

In Reply to: Re: Post Radiation Myelitis posted by Julie on August 22, 2000 at 09:31:32:

: : :
Pat,
Just wondering how your progress has been?
Are your symptoms stable?

5 months after my mom had radiation to her saliva gland on the left side of her neck, she started to experience "numbness, cold hands, tingling in her neck that shot down to her feet, and foot-drop" We took her to several physicians and finally she was diagnosed with Radiation Myelitis. The prognosis was grim, and because this was a very rare injury there was not a lot that could be done. We tried high doses of steroids,a Hyperbaric Chamber, and nothing slowed down the progression of this terrible injury. Eventually my mother (59 at the time) suffered from severe neurological sypmtoms--she had to walk with a walker, she had incontinance, and 14 months after she underwent radiation she passed away.
: We found out during the course of this progression that she received an overdose of radiation and that's what caused the spinal cord injury.
: I have done a lot of research on this subject and there unfortunately is not a lot out there.
: The steroids "seemed" to help for a while, but the injury was to severe to overcome.
: I know this is probably not what you wanted to hear but if it can help...

: By the way, did they use something called a hollow bite block during radiation?
: Good Luck.


: Seven months after having radiation on the right side of my face after a parotidectomy, the left side of my body went numb. Eventually I was told that this was caused by radiation damage to my cervical spine. I was told that it could get worse, it could stay the same, or it could improve. It has now been 6 months with no change. Has anyone else experienced this?
: : : Pat C.

: :
: : Pat -

: : I have just been diagnosed with "Motor Neuron Disease" caused by radiation. I had radiation on my spine in 1998 and have had a muscle reduction in my right calf for about 18 months. I haven't had any numbness or pain, just muscle loss.

: : I'm just starting to dig for solutions, as it appears you are. My doc (a neurologist) tells me that there's not much I can do about it. He also doesn't know if it will get worse or stay the same.

: : Have you come across any insights in your search?

: : Dan Sullivan




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