Re: any info on genetic spinal cord detereation

In Reply to: any info on genetic spinal cord detereation posted by kathy mayes on October 01, 1999 at 17:37:06:

: i was diagnosed whith a spinal cord condition that is causing my spinal cord to detereate and it makes it impossible to walk. it is like my brain can't tell if i am standing or sitting. I do feel my legs and such but it messes with my balance and makes me dizzy to try to walk. I would like more info on this condition if you know of any new treatments available i would love to know as well. thanks kathy

Kathy, my niece was diagnosed with syringamyelia when she was a young girl. Is this what you have?
She is able to walk, but has no feeling in her left side. Her spine is also deteriorating. Donna