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Posted by Tresa
on November 30, 1999 at 10:51:02:
In Reply to: Myelomalacia posted by Mary Ann on October 18, 1999 at 15:55:42:
: Does anybody have any information on Myelomalacia, besides the basic information, such as cord atropy,
: softening of the spinal cord, or scarring of the spinal cord. I have Myelomalacia, secondary to trauma,
: at levels T6-T10. I would love to know where to find some in depth information on this disorder or talk to
: someone who has this disorder. Is myelomalacia progressive or fatal? I have many questions.
: Thanks for any help you might throw my way,
: Mary Ann
Karen - did you have any luck obtaining information on myelomalacia? I had ependymoma in the spinal cord (C4 - T2) in 1997. The tumor was successfully removed but I lost sensation and proprioception from my waist down. I also have problems with my arms and hands. Still much pain across the shoulders / neck. I got worse recently and yesterday was diagnosed with myelomalcacia. Any information you could provide to me would be greatly appreciated.
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